One evening I was on Reddit and came across a conversation about what it's like living with epilepsy. I have epilepsy and thus it kind of got my attention. I read that there are many people who are struggling with certain things that you might experience if you have epilepsy. For instance, the side effects of medication and how it can affect your personal relationships, and the (constant) fear of not being in control of certain aspects of your life.

 

I read that there is an agreement that there is a lot of information out there about the condition itself and that many charities and projects exist that are fundraising for more epilepsy research. However, there is a lack of services provided to people who just want to talk about their experiences. Or a place where you can read (positive) stories of others to relieve some anxiety or fear of the unknown. A support group. A community. So here we are!

 

There are three goals here and they're sometimes hard to combine, but let's try. One, I'm hoping that the more people share their stories, the easier it will be for others to talk about it openly without shame or fear. Two, by sharing your story you can empower people with epilepsy and show them that they are not different and should not see themselves that way. You can do whatever you want; it's all in your power. Sharing your story might help others to reach the point of acceptance sooner in order to live their lives like anyone else. And finally, by sharing your story you can make sure that people - that have loved ones with epilepsy - understand that it sometimes takes time until the person with epilepsy feels less isolated and is open to talk about it and that they shouldn't give up on them in the process. No ones needs pity, but everyone needs being able to be understood. And sharing makes that possible.

 

People all over the world have epilepsy and people newly diagnosed could be struggling, a huge collab between all of us could lead to more help and a bigger understanding.

 

- Ann Eshaw

 

P.S. I'll be the first to share my story: